Monday, September 19, 2011

The Strawberry stork mark? Sept. 19th

First I want to start off Wishing my god child Bopper Kati Peditto A very Happy 18th Birthday today! I love you.
So a quick cancer update. No Chemo today...White count is just a bit to low. But I did take the Nupogin shot & so far so good. I go back on Wednesday 9-21-11, if I'm all good, then I get chemo.
The reason for the title of this post is a genetic question. After losing all my hair Lisa asked if she had hurt me because she thought I had a rash on the back of my neck? My mom said no that's her Strawberry birthmark, all the Peditto's have one. I thought she was crazy, but as you will see in the picture of me & Darren we both have the same mark. Mom said Paul has it too. She also said Grandmom Peditto said that all her boys had them? So I am throwing this out there to all my cousins who are reading this & if you can ask around to those that are not. Who else has this birthmark? Now Zackary does not have one, but I think the gene must come from the father, & I know Kati has one cause I distinctly remember it. Not sure about Nick? (Paul or Steph does he?) Also I think Anna has one but can't be positive, but I will find out.
And is it a Peditto thing only or is it a Monaco thing too? I am so curious. Please let me know.
I have also added some pictures of my wigs......so far Its a Blonde, Purple tips, & then the basic black. But no worries more will follow soon.
xoxo

 


Wednesday, September 14, 2011

OC NJ Breast Cancer walk Oct 16th

Wanted to give everyone the heads up on Oct 16th we will be doing ( I hope to be doing, depending on how i feel) the OC NJ Breast Cancer walk on the boardwalk. If you would like to join us, the more the merrier.
http://makingstrides.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY12Eastern?fr_id=35961&pg=entry
This is the registration for that walk.
My cousin also designed a t-shirt if your interested & would like one let me know what size. I waiting on the cost to have the t-shirts printed but don't think it should be much.
Thank You for all the prayers & support.
xoxo,
Tonilyn

Round 2 Chemo & Get out the Buzzers Sept. 14th

Again I apologize for the delay in my posting. It seems that this will be the normal amount of time in between posts after a chemo treatment. They are kicking my Ass! We or should I say I decided on treatment day
 (9-7-11) that I was not going to take the Nuelasta shot or the Nupogin. If that's the cause of the migraines i wanted to narrow it down so it didn't happen again. Now lets hope when I go back on Monday Sept. 19th. My white count is OK & lucky me can have another treatment rather then having to skip a week to wait for them to go up.
So the pattern seems to be Treatment day....pretty good. a bit tired due to all the waiting and the fact that i', being given poison.
The 2nd day......Really good almost a boost, I'm sure from all the steroids & everything that is still moving through the system.
The 3rd day......Still pretty good, eating well a bit more tired but can still get around.
Day 4, 5, 6 out......That's about it, just out sort of an out of body experience, some nausea, very tired & then theres hot head from steroids, sweating, chills, dry mouth, your thirsty but nothing tastes good, so you don't want to drink( but you have to, to keep hydrated). Then the pills that help most of that just knock you oh & then theres the indigestion, so i eat a box of tums which adds to the dry mouth. Yup the fun has begun.
But if I can have 4 or 5 good days before my next treatment I'll take it.
Only 6 more to go..............
On another side effect as was said before I should loss my hair. Yup I did. I was told 14 days from the first chemo it was to the day. That's pretty good estimating.
So on Tuesday night I had my girlfriend Lisa come over to shave my head. It was better then waking up with it all over my pillow. ( Thank You Kristin, for that bit of advice. You were correct! That was a much better idea).
I decided to make it a bit of a party. Because it was last minute I didn't really get to invite a lot of people. But those that showed up where real troopers! Thank You, Lisa for the head shave it means more then you will ever know. Mom for not crying until Stephanie text you back, Amy for the professional photos,
 Colleen (sidekick) for the idea to carve initials in the back of my head & not being the first one to cry, Jessica via Face time for the Mohawk idea & trying to control the situation from Maine. & Of course Joe for sitting in the back ground then kissing my head & telling me you love me & that you think I'm still beautiful hair or no hair. You guys really are a great support system. I love you all.
So now I sport a wig but a scarf more then that. wigs are itchy.
Then the next day I got even more support, my brother Darren shaved his head, & my cousin-in-law Tim who is married to my cousin Victor, shaved his head in support of me. Talk about touched, really i do not expect people to do that. but wow! I really feel lucky to have this amazing support system. Thanks Guys.
Until the next treatment........
xoxo



Darren & Me
Tim before & after