Sorry I never updated the results from my July 13th visit. After getting home on that Wednesday I sort of hit a wall, a very large brick wall ( & that's how my boob feels too).
I decided I needed a little R&R at the beach, add in a little vitamin D, sand, drunken family, crabs, dairy bar, laughter & a BF ( Michele's, Chris) from Colorado who was stylin & profilin & I am good as new. Mentally for the time being anyway.
Any hoo, got to Hopkins at 1:00, go in to the breast center (they're starting to know me in there), I see Laura the nurse Practitioner, things look good, but nope still don't think I'm removing that drain....too much fluid. Ugh, your kidding me? So Dr. Sacks is there that day, she's going to have him come in & check me out. He comes in....." WOW look at that, I do nice work!" He is so excited about how my boob looks. But yup still too much fluid, drain stays, but Laura can expand me a little. This will take up some of the room & help alleviate the fluid. fingers crossed, come back on the 20th next Wednesday & it should able to come out. So they inflate it with another 50 cc. Nice its almost the same size as the other one? ( Sorry brothers if this is TMI?)
Next appointment all the way across the other side of the building......Radiology & Medical Oncology.
Radiology is running behind, so Dr. Prowell comes in first she is Medical Oncology. She reminds me of Tinkerbell with lots of cleavage. She's young but very smart. Has no idea I don't know my Pathology results & starts going over them......"So 8 of the 12 of your lymph nodes they removed were cancerous, & your tumor was 2 cm, OK the cells under the nipple are good.." Whoa what 8 were positive? oh you don't have these yet. UMM NO!
Ok so treatment will be about the same, but for about 6 months, your a stage 3 now. And we'll need a pet scan, & bone scan. Because of the # of nodes. We want to make sure that there are no more tumors or Cancer anywhere else in the body, before you start treatment. WTF. ( Yup its my new mantra) But usually I say the actual words, not the acronym.
Oh it says here your taking Yaz birth control? That's wrong, right? You stopped that? Um nope still taking it. WHAT? that should have been the 1st thing you did! Your cancer is estrogen receptive! You can not take any kind of hormone or birth control.
Yes first thing I threw out when I got home.
Dr. T calls me he doesn't realize I'm at Hopkins & Is calling me about my Path reports. So Tatiana ( Dr. Prowels first name) Calls him back. "Ted, Hi its Tatiana" ( watch it Tink Sandi Tallon is gonna get mad, she hears that flirting w/ dr. soft voice). Yes I'm w/ Ms. Peditto now going over her reports.
Finally Dr. Chin, & Dr. Zellers come in, same thing...yata yata yata....go over reports , ok so radiation will start a few weeks after chemo is done, for 4months.
So here's where I'm at.... Wed. 7-20, 1:00 Laura again, drain out? I hope. Expand me a little more.
Before that not sure what time, Pet scan then bone scan, 3:00 Dr. Prowell again, she should have the results of those 2 tests, then a definite treatment plan?
That may start in August....And about March radiation will begin.....then the following March after all healed up, skin is back to normal reconstruction & other boob is taken, & ovaries are removed.
So if all goes as planned it will all be over in & healed in April 2013.
And i am heading on a vacation somewhere, Maybe Seattle. My future sis in law Andrea always talks about what an amazing trip we could take. So maybe we'll do it? & I have family out there? Hummm
Oh almost forgot to talk about the pain from the expansion, as if its not bad enough that my boob is that brick wall I was telling you about, getting expanded hurts like an MF'er. let alone that the drain is still in, so it moved had to re-heal & stretch out the skin..... Lovely. Tylenol 3, hydracodone, & a Valium later I was fine.
Until next week. Unless something good happens in between.
xoxo
2 comments:
xoxox
wtf doesnt say enough...so sorry the news hasnt been as positive as you had hoped. thinking of you daily and praying for the bubbies as well. luv you cuz
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